update 19 July 2021 from Department of Health & Social Care

The program to collect data has been paused to allow more engagement with GP's, patients, health charities and others to strengthen the plan. 
While they continue to work on the infrastructure and communication for the project they are not setting a specific start date for the collection of data.



General Practice Data for Planning and Research (GPDfPR) 

The data held in the GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has developed a new way to collect this data, called the General Practice Data for Planning and Research data collection. 

NHS Digital will not collect patients’ names or addresses directly. Any other data that could directly identify patients (such as NHS Number, date of birth, full postcode) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital (a process known as pseudonymisation).

This collection will now start on 1st September 2021 so if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with your GP practice by 23rd August 2021.

Once your information has been uploaded, you will not be able to get it deleted by NHS Digital.

The National Data Opt Out - that you can set online or via the NHS App - will not work to prohibit this data extraction for your GP record.
You need the Type 1 opt-out to do this.

You can opt back in to secondary uses, including GPDPR, at any time.

Click on the link below which takes you to the NHS Digital General Practice Data for Planning and Research website for full information


GDPfPR + National Data Opt out

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